To say I'm annoyed is an understatement.
As a lot of followers will know, Tom is suffering from an incurable illness called IPF, this is short for 'Idiopathic Pulmonary Fibrosis'.
Nobody seems to know where this illness comes from as Tom has never been a smoker or worked in an industry that could have caused it but there is no cure.
It results in getting more and more breathless as the disease progresses and comes with a cough that makes the breathlessness worse.
WHY AM I HOPPING MAD?????
Because for two years we have done the rounds of experts.
We have seen three different consultants, one specialist nurse and several gp's asking for something for this distressing cough.
All they could come up with was Codeine liquid or Oramorph.
Taking either of these meds have nasty side effects that at the moment Tom does not want or need.
It just happens that last week was our 6 monthly check with the 'Specialist Nurse, AHEM' who suggested he took Omeprazole as it could be reflux that is causing the cough.
(I don't think so but we will enquire)
We spoke to a GP that we have never seen before and he was not keen on Tom taking Omeprazole for any length of time owing to the side effects but asked if we had ever been told about cough control.
'No' we said.
He sent us a leaflet by email that comes from 'Guys and St Thomas's Hospital' in London.
Very shortly after Tom practicing one of the methods on the leaflet he was able to control the cough and had done so ever since.
Please pass this on if you know of anyone that this could help.
Would you have been mad over this or am I just making a storm in a teacup?
WHY ARE THE CONSULTANTS AND NURSES AND EVEN SOME GP'S AT OUR SURGERY NOT AWARE OF THIS?
What also makes me mad is that there are people out there who do not know of this and are medicated up to the hilt.