Tuesday, 17 September 2019

HOPPING MAD


To say I'm annoyed is an understatement.

As a lot of followers will know, Tom is suffering from an incurable illness called IPF, this is short for 'Idiopathic Pulmonary Fibrosis'.
Nobody seems to know where this illness comes from as Tom has never been a smoker or worked in an industry  that could have caused it but there is no cure.
It results in getting more and more breathless as the disease progresses and comes with a cough that makes the breathlessness worse.

WHY AM I HOPPING MAD?????

Because for two years we have done the rounds of experts.
We have seen three different consultants, one specialist nurse and several gp's asking for something for this distressing cough.
All they could come up with was Codeine liquid or Oramorph.
Taking either of these meds have nasty side effects that at the moment Tom does not want or need.

It just happens that last week was our 6 monthly check with the 'Specialist Nurse, AHEM'  who suggested he took Omeprazole as it could be reflux that is causing the cough.
(I don't think so but we will enquire)
We spoke to a GP that we have never seen before and he was not keen on Tom taking Omeprazole for any length of time owing to the side effects but asked if we had ever been told about cough control.
'No' we said.
He sent us a leaflet by email that comes from 'Guys and St Thomas's Hospital' in London.

Very shortly after Tom practicing one of the methods on the leaflet he was able to control the cough and had done so ever since.


Please pass this on if you know of anyone that this could help.
Would you have been mad over this or am I just making a storm in a teacup?

WHY ARE THE CONSULTANTS AND NURSES AND EVEN SOME GP'S AT OUR SURGERY NOT AWARE OF THIS?
 What also makes me mad is that there are people out there who do not know of this and are medicated up to the hilt.

Rant Over....

21 comments:

  1. Sorry to hear that you have been let down by the team of doctors and nurses looking after your husband, but lucky you came across the one that actually helped - isn't it always the way - it has happened to me before - so I know how you feel. My colleague (only 50)had just been given the all clear after having breast cancer but she then started with a peffy cough one day at work - I was worried and advised her to see a doctor knowing that previous breast cancer can return in the lungs. She eventually saw her GP who diagnosed that it was just a reflux cough (his wife had it too) and gave her Omeprazole. A month later the cough was far worse and by the time the GP finally thought to send her for an xray she had horrendous blood clots on the lung and the secondary cancer had taken hold quickly. He cost her much valuable time and sadly she died a year later and like you I was so cross with that doctor. For the life in me I cannot think why he did not take urgent action, given her history, when she presented with a cough that wouldn't go. I keep coming across this 'reflux' cough more and more and the use of Omeprazole which like the doctor said has many side effects.
    ...My rant over - glad your husband is finding the advice helpful and I hope your information will help anyone else in his position.

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  2. Oh yes, I would be right there with you being hopping mad. For him to have gone all this time without someone suggesting something that can relieve it is horrible. Thankfully he saw that new one who had the knowledge to help him out

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  3. I don't blame you - I would be hopping mad as well. So glad it has helped Tom.

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  4. I would be hopping mad too. Poor Tom, to think his cough could have been controlled all this time.

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  5. it is amazing to me that the doctors and nurses don't pass on this info and yes, I would be hopping mad. I am passing along your post to a blog friend whose hubby is coughing to much. thanks for posting.

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  6. I, too, have a constant cough. The doctors haven't been able to stop it. I am going to try this. It will be wonderful if it works for me!! Thank you so much for posting it.

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  7. How frustrating! And yet, I understand that doctors and nurses are overworked and subject to tremendous pressure when it comes to diagnosing and treating patients. It is surprising no one thought to suggest cough control earlier -- but they're probably conditioned to offer "medical" solutions (drugs) because that's what patients expect. Just a guess. I'm glad the cough control seems to be working!

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    1. This was suggested to us Steve, but who want to be out of it on morphine when there's a simple solution.

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  8. Briony, that's awful, all this time poor Tom has been suffering needlessly, when he's already unwell. No it's not a storm in a teacup, anyone would be mad. Thankfully you've seen a GP who's on the ball - at last.

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  9. It would seem that with the supposed advances in medicine and treatment there is now a lack of individual attention--the doctor or nurse caring enough--being allowed time enough with each patient--to explore alternatives rather than dashing off a prescription and calling, 'Next!'
    In the clinic where our niece works [she has an RN as well as other medical degrees] her schedule allows 10 minutes per patient.

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    1. Our surgery is the same, just 10 minutes person. I am mad with the consultants most of all, surely they should know everything about their specialist subject.

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    2. 10 minutes per patient!!!!! What on earth can be accomplished, healthwise, in just a 10 min. conversation? Truly aggravating and disheartening.

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  10. I would be upset as well, Briony. I can understand one medical person missing suggesting this, but not all of them. It's a NHS publication after all. And you'd think they would want to try non-prescription remedies pretty quickly when your husband's health is so compromised. I'm glad your husband has had good results with this, and thank you for passing it on so others can benefit.

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  11. Awwww Briony, I'm so sorry about this. Isn't it a shame that doctors' offices don't rely on more wholistic treatments for symptoms & disease, rather than always reaching for the presciption pad? I'm glad your husband was helped but boy oh boy, it could have come a lot sooner, couldn't it have. Sending hugs your way today, Andrea xoxoxo

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  12. YES, I can see why you are mad! We live in a valley with a community hospital. I have gone there, and to local doctors for serious things, with no help! Turns out we have to go over the mountain to the big university hospital. They know and do things that no one around here does! Phil has a chronic cough, and has had it for many years. One thing our doctor suggested was not eating close to bedtime. That has cut down on his coughing in bed. I have printed this for him, thank you so much!!!

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  13. You are right to be hopping over this! I'm glad you've found a solution. Thanks for the link.

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  14. Dear Briony ~ I would be mad too, but am so glad that the technique for helping with Tom's cough has worked.

    Love, hugs & prayers for the both of you ~ FlowerLady

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  15. In the last couple of years many of our normal helpful clinics have gone out to private companies who promptly shut down all the clinics and move services to a centralised location at least 50 miles away , so thats at least a 100 mile trip , with mr BH and his spinal problems this is virtually impossible , pain clinic has now also gone so its left us in Limbo , we can manage to get to the clinic but then we need to find disabled suitable accomodation for one night to be able to get back , we did ask the hospital and they said thats what the disabled get PIP payments for ...ho hum

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  16. I just had a whole big reply typed out and lost it....due to clicking on the link which I wanted to read again...LOL I almost always right click and click to open in a new window. Anyway. I was sent a link to this post. My husband has had a chronic cough for years and years and years. Several years ago, we went to an ENT that did this lab work/test...not sure what to call it. It was something new and was not covered by insurance. But from it the doctor told Roger which foods to avoid...and he did it. And he went to almost no coughing. then Thanksgiving and Christmas came and he went off the diet and would never go back on it.

    His cough has gotten worse over the years...if he is outside and coughs, it can be heard all over the neighborhood. I am talking a block away. In 2016 my husband had a brain bleed...they asked me different times had he fell...or bumped his head. He had not. they lifelined him to a bigger better hospital and when the nurse heard him cough there, she said, 'That right there could have caused the brain bleed."

    since then we have been to ENT, which found he is allergic to so many things...and he gets allergy shots. But does not help the cough. We have been to pulmonologist. No help there. When he was in therapy after the stroke, the speech therapist did have the method of tucking his chin and that did not seem to help.

    Due to his stroke, it is hard to get him to do either of these methods right. Very hard for him to retain instructions. but I would like to get time to try...do you mind saying which of them helped your husband? so much of the time Roger's cough just hits him by surprise.

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  17. شركة تنظيف منازل بالجبيل افضل شركة خدمات منزلية بالجبيل نظافة شاملة مع التعقيم والتلميع وابادة الحشرات شركة تنظيف بالجبيل شركة المثالية هي افضل شركة نظافة بالجبيل والمنطقة الشرقية تقدم لعملائها افضل جودة وارخص الاسعار بالاضافة الي تقديم الخدمات من خلال عمالة مدربة وذات خبرة كبيرة بمجالات التنظيف ومكافحة الحشرات , فلا تتردد في الاتصال بشركة تنظيف بالجبيل للحصول علي كل ما هو مميز ولضمان الحصول علي منزل امن نظيف راقي خالي من المواد الضارة والميكروبات

    شركة تنظيف منازل بالجبيل
    شركة تنظيف بالجبيل

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